Other resources on urachal cancer
Find trusted resources on urachal cancer, including support groups and patient organizations.
If you're looking for more information or support, you're not alone. Urachal cancer is a rare type of bladder cancer, and finding reliable information and support can be challenging. Below are reputable organizations and resources that provide guidance, patient stories, and practical advice:
Urachal Cancer Network
A patient-led network that shares personal experiences, raises awareness, and advocates for better research and treatment of urachal cancer.
European Reference Networks (ERNs) – Rare Cancers
ERNs are virtual networks involving healthcare providers across Europe. The EURACAN network (part of ERN) focuses on rare adult cancers, including urachal cancer, and connects patients with specialized care and research.
National Organization for Rare Disorders (NORD)
NORD provides detailed information on urachal cancer, including symptoms, causes, and treatment options. They also offer connections to support groups and other rare disease resources.
Rare Cancer Alliance
This organization provides support and information for patients with rare cancers, including urachal cancer. They offer forums for patient discussions and share the latest research updates.
Without a Ribbon (WAR)
An Australian-based organization that supports individuals with rare cancers, including urachal adenocarcinoma. They provide information on symptoms, treatment, and patient support networks.
These organisations can help you find trustworthy information and connect with support as you navigate life with urachal cancer.